| Description | Link - Note that all these links will open in a new window |
A directory of accessible accommodation and travelThe new OpenBritain Guide is now the definitive book for the traveller with access needs. The guide is packed with easy to use information from where to stay, how to get there and what to see and do once your there. |
www.openbritain.net/openbritain |
www.patientslikeme.comShare your experience of symptoms and treatments with others who are living with MND. Benefit from others who are making the same journey. |
www.patientslikeme.com |
Justgiving for CharitiesThis site will process online donations and reclaim Gift Aid for member charities, and charge a small fee (5%) for the service. This is similar service to www.virginmoney.co.uk who charge 2% |
http://www.justgiving.com/ |
Virgin Money Giving for CharitiesThis site will process online donations and reclaim Gift Aid for member charities, and charge a small fee (2%) for the service. This is similar service to http://www.justgiving.com/ who charge 5% |
www.virginmoneygiving.co.uk |
RAC Text NumberAs well as their standard breakdown number (0800 828282), the RAC have typetalk and text facilities (07855 828 282 ). |
http://www.rac.co.uk/breakdown/blue-badge/ |
The National MND Association WebSiteHere you will find a vast amount of information on MND, for those living with MND, caring for someone living with MND or a medical interest in MND. |
www.mndassociation.org |
Sarah's StoryA hardhitting, disturbing yet thought provoking short film about MND which highlights the rapid degradation caused by this silent attacker. |
www.sarahsstory.org.uk/ |
Birmingham SymposiumA 10 minute video of the Birmingham Symposium which was held in November 2009. |
http://www.youtube.com/watch?v=3X4Pkw-_i38 |
Ceiling Track HoistsInformation on ceiling track hoists, especially which hotels have them. |
http://www.chuc.org.uk |
DisabledGo Access InformationDisabledGo provides free detailed access information for disabled people across the UK and Ireland. The level of detail is amazing, how wide doors are? how heavy are they? what height is the lowest table? These and many more can be answered from this site. |
www.disabledgo.info/ |
New Gene MutationLess than a year after the last major research breakthrough, collaborative researchers have discovered a new gene mutation that causes a rare inherited form of MND.This was also featured on the BBC Web Site, clink here for that article |
www.mndassociation.org/researchnews |
Swine Flu UpdateInformation on the Swine Flu Pandemic from the MND Association. |
www.mndassociation.org/life_with_mnd/swine_flu.html |
A directory of information for the Wheelchair UserInformation on sports activities, Clothes designed with the chair user in mind, holiday locations, dating, theatre & arts companies, new wheelchair designs and much much more. |
http://www.thewheellife.com/live/home.php |
research and information for older and disabled peopleRicability is an independent consumer research charity providing free, practical and unbiased reports for older and disabled people. |
http://www.ricability.org.uk/ |
Music DownloadBy Ricky GrahamA new edit of the track “Beautiful Beginning”, originally written and released in 2006. This version features vocals by Robbie Reid. Remix of “Music Box” by DJ Elemental. ”Music Box“ is featured on the 2009 release, “Rain Down Fire.” |
http://shop.rickygraham.com/ |
Warmer Homes SchemeIf you receive certain benefits (DLA is one of them) you may be eligible for insulation and heating through the Warm Homes Scheme. Freephone 0800 988 0559 for more details. |
http://www.warm-homes.com/ |
Motor Neurone Disease ResearchThe research pages of the MND Association website. Here you can learn about the search for causes and treatments for MND, and find out how the MND Association is involved. |
www.mndassociation.org/research |
Dementias & Neurodegenerative Diseases Research Network websiteThe NIHR Dementias & Neurodegenerative Diseases Research Network (NIHR DeNDRoN) is one of six topic-specific Clinical Research Networks funded by the Department of Health in England as part of the National Institute for Health Research. NIHR DeNDRoN supports the development and delivery of clinical research in the NHS in the dementias, Parkinson's disease, motor neurone disease, Huntington's disease and other neurodegenerative diseases. |
www.dendron.org.uk |
The BioMOx StudyMND (ALS) research is held back in part by the lack of an early diagnostic test and predictable markers of the progression of the disease these are called biomarkers. Patients still wait too long for a certain diagnosis of MND, and it is possible that future drugs may need to be given at much earlier stages to be most effective. Clinical trials currently require lengthy study times to get a clear answer, and don't always account for the variability of the disease between patients. |
www.biomox.net |
DLA and AA criteriaThis site provides clear criteria for Disabled Living Allowance(DLA) and Attendance Allowance(AA). Note that the rates quoted are out of date. |
http://www.lawcentreni.org/EoR/disability_living_allowance.htm |
Benefits and Tax CreditsA very useful and clear site which explains many of the benefits and tax credits available. |
http://www.lawcentreni.org/EoR/ |
Motor Neurone Disease Association of Northern Ireland
